First of all apologies for not posting recently on the blog. But it’s been a rough two and a half weeks. For those of who don’t know, when I attempted to return from my first three weeks at NIH I immediately developed sepsis, acute kidney failure, and liver failure the morning after I got back home.
How’s that for a welcome home?
I apparently developed a hemorrhoid that created an abscess which infected my entire body.
What a pain in the ass.
After seeing very little improvement in both my immunity, white blood count, and the pain in my ass (they really couldn’t treat the hemorrhoid), the NIH suggested an alternative treatment for my immune system since I’m not responding to the original treatment as they had hoped.
The only problem is that I can’t sit on a plane for 2 hours to get back there, so Angela and I are flying on a medical evacuation jet with a hospital bed so my ass doesn’t hurt. We leave today and should get to NIH tonight. We don’t know how long we will be there, but I will start to receive granulocytes (white blood cells) in an effort to increase my white cell blood count.
The next step I ask of everyone is to visit the site bethematch.org to see if you can be a bone marrow donor. I believe all you need is a mouth swab to be added to the registry. It is easy to do. It doesn’t take much time and you can potentially save my life or someone else’s life.
Thanks again to everyone who has helped me and my family through this difficult time. Thank you to everyone for your continued thoughts and prayers. At this time that’s pretty much all we can do.