In early 2014, I acquired a bone marrow disorder where my blood cells are very low (red cells, white cells, and platelets). It’s called Aplastic Anemia. I don’t know how I got it or why I got it. All I know is that this condition is very rare and can be fatal, and it may require a bone marrow transplant. I have weekly blood transfusions and am currently undergoing chemotherapy. That should make for some interesting blog entries.
When I was in the hospital for the first time with this condition, I was told that one of my nephews, Hunter, was told that his Uncle Phil had a problem with his bone marrow. He then asked his mom, “What is Bone Marinara?” That became the name for this blog, which I hope will continue when all this is done. And for you Twitters out there, #bonemarinara!
I’m not looking for sympathy, or to share my pain and sorrow. I know that others are going under some circumstances and conditions much worse than mine. I’ve chosen to have a positive attitude and to share my experiences for not only my coping, but for my family and friends to follow my battle.
I want this to be a positive learning experience for my children and anyone else. My goal is to inspire, motivate, educate, and use a little humor along the way. I will be sharing the good and the bad. I hope you find the blog informative and fun.
I’ve had so many friends and family comment on how much they love this blog. It inspires me to continue. It’s also easier to tell someone “Follow my blog” rather than repeat the same story 20 times about how I’m feeling!
I have an amazing wife, supportive family and friends, and a nerdy love of writing blogs. My ultimate hope is that anyone who reads this blog can laugh and learn, whether friend or family, or someone who just stumbles on my story.
If you want to really know more about my story, read about it here!