As you know, my diagnosis is Severe Aplastic Anemia. The good news is that today I didn’t need another transfusion! While my blood levels are all still severe, they aren’t critical enough to warrant a transfusion this week. I’ve been feeling really good the past week, and the bruising is subsiding. Thank you again to all my blood donors, and be sure to give blood and platelets if you can! This is your last weekend to get an official Bone Marinara bracelet for donating!
It’s been a few days since I last updated everyone. The reason was that (1) I was waiting on a few final lab tests to establish a cause of my severe aplastic anemia, and (2) I would have a better idea of my course of treatment after my visit with Dr. Cataldo today , and (3) I was doing a bit of research on Aplastic Anemia’s pathophysiology and treatment.
That (#3) was a bit depressing. And a little scary at times.
But am I worried? Does it way on my mind? Hell no. I have the same philosophy of home-boy Peyton Manning. Priority number one:
Aplastic Anemia can be inherited or acquired. Exposure to chemicals, drugs and radiation have been known to cause Aplastic Anemia, but 75% of the time, we don’t know the cause of acquired Aplastic Anemia. I’m in that 75%. We don’t know what caused my disease.
We’ve ruled out viral causes such as parvovirus, Epstein-Barr virus, Cytomegalovirus, and HIV. (Side note: My wife Angela said that if I had HIV, she’d kill me anyway.) There’s one very remote possibility that this is another form of cell immunity problem called Paroxysmal Nocturnal Hemoglobinuria (PNH), but that’s going to be very rare. It’s like a ‘zebra’ diagnosis….when hear hooves, first think it’s horses…but remember that it might be a zebra.
Our working etiology (cause) is an autoimmune disease, where my immune system attacks my bone marrow, destroying it for some unknown reason. It’s like other autoimmune diseases similar to rheumatoid arthritis or lupus…but as Dr. House would say, “It’s not lupus!”
So, after 3 “Sneaux Days” here in south Louisiana (without any snow mind you), with all 4 kids home, I’m definitely ready to head to the Brewshack and share a beer with you. Here’s my video update:
I’m working on a post that will explain more about Aplastic Anemia and the treatment. Stay tuned, and thanks for everyone’s thoughts and prayers!